What It's Like Having 2 or More Seizures in Less Than 24 Hours

Having seizures over and over again in one day is so stressful.  I always wish for my seizure control was back on track. When I have a seizure in public, I feel humiliated as if I've done something wrong.  I don't like having grand mal seizures because they are so scary. Having the feeling of not knowing where you are or who you're with during the seizure seems scary too. 

Paramedics come and check me out, but they won't find anything about me. The only thing they'll find out is either low blood sugar or that I have epilepsy.  I suffer from fainting (very common with epilepsy) and the main cause is lack of energy from not enough calories.  This trigger leads to grand mal seizures, while my others usually don't.  

While waiting for paramedics, people look at me and feel really bad I have to go through so much of a seizure procedure. Saying things like, "That poor girl. I feel so bad she has to go through this". I get looked at and go home. Sometimes I can have more than 1 seizure in a day and it scares the living c*** out of me because I tend to lose more and more energy.  Seizures also become scarier when you have more than 1 on the same day. It is basically like a cycle, but not a good kind.  

I feel ashamed of myself after a seizure because I feel like I did something wrong.  Seizutes are uncontrollable episodes and I make sure to stay hydrated, have medical ID bracelet, and everything to prevent seizures and sometimes it doesn't work. My family encourages me to stay strong and not be ashamed of myself because I did everything right. 

The next day people usually ask about what happened and I sometimes don't remember with grand mal seizures.  I explain things and get on with my life.

Having a seizure disorder is difficult because people don't know enough and I don't give up and help them know a little more.  Staying strong has always been the best way to overcome  embarrassing seizures from living in this experience.